As I write this I am sitting in a chair beside my daughter, age 9, who is laying in her hospital bed. She asked me yesterday, “Mom, I am going to be here more and more as my cough gets worse and I get older aren’t I?” She understands her reality without anyone telling her.... Continue Reading →
When weight loss is a bad thing.
How exactly can 100 grams make anyone cry? When you go to the Cystic Fibrosis clinic for your 3 month check in and your little guy not only hasn't gained weight in 3 months but has lost 100 grams. Sucker punch to this CF momma's heart. Here's the place where only other CF mommas (that's... Continue Reading →
Cystic Fibrosis Taught Us This
What our family has learned from cystic fibrosis.