Testing, Testing 1,2,3

One of the hardest parts of being a mom is when your child is in pain.   One of the hardest things a child will have to reconcile is why your mom would allow pain.

Mother’s are supposed to protect and prevent injury to their children but what if the very things designed to help your child are painful?

My husband takes our littles to the lab each time blood work is requested.  I can’t do it anymore.   The last time, I had my little one pinned down with one leg and both arms, she peed on me on purpose just so I was well aware of how mad she was at me for allowing this pain to happen.   Listening to their cries made me cry.   Seeing the confusion in their eyes as they wondered why I wasn’t stopping the mean lady from hurting them was unbearable to my momma’s heart.

Blood work, pulmonary function tests, ultrasounds, x-rays and throat swabs are some of the things I subject my littles to on purpose.   They don’t understand yet, why I allow them to endure these things.

One of the hardest parts about having children with Cystic Fibrosis is watching or holding them through pain.   I wish I could take it for them.   I wish they didn’t have to endure it.    All I can do is advocate for them and try to make sure that the doctors and nurses are being as kind and gentle as they can be.


A healthy child will never comprehend what going to the clinic means for our littles.   Mother’s who have had to hold their child while getting routine vaccinations will have some idea of what CF Mommas go through and it’s no fun.   We want to be loving and be the mom who makes them happy.

When we use terminology like CF Warrior, and Fight for CF we are reminding ourselves that we are in a battle every day.   That we do our best to protect our babies (no matter how old) and we keep faith, strength and courage close.   We draw on the strength, encouragement and support of our friends and family.    Your words of encouragement and offers of meals, rides, babysitting or even staying at the hospital are what help us to continue.   We draw on the knowledge of those who have blazed the trail before us; other CF Mommas who have gone down the same road and can truly understand our grief, frustrations, and anxiety.

The tests are necessary evils so that the professionals can make sure our littles are doing well or to find out how unwell they are.   We can’t stop them.   They will require more and more as they age and this disease begins to take a harder toll on their bodies.

On this day, the 7th day of May, which is Cystic Fibrosis awareness month, I hope that I have enlightened someone to the painful and difficult side of this disease.   I hope that more people will donate to the cause when they understand how traumatic all the tests are to them.   I hope that one day the only tests they will need are check ups to make sure they are healthy.   In the mean time, I hope that my littles will one day grow up to know just how much it hurt me to see them in pain.   I hope they realize the effort we put into their health and the testing we endure alongside them was because we love them so much and want them to live as long as possible.



Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

Blog at WordPress.com.

Up ↑

The Godly Chic Diaries


how to build confidence

Build confidence, Get inspiration, improve self confidence

Our Family Grows

Foster Care Advocate and Village Builder

Foster Life, Unfiltered

No filters, no edits, just the real deal about foster parenting.


What if you spent every day looking for One Beautiful Thing?


No matter what you have been through, you can feel better again

Adoption Detective: Memoir of an Adopted Child

Our lives are the sum of all the choices we make, the bridges we cross, and the ones we burn.

Hajra's Blog

Broken crayons, still colour.

Damon Ashworth Psychology

Helping people thrive

The adopted ones blog

Two adoptees - one vocal the other not so much...


Two Columbus Foster/Adoptive Dads

America DeFleur

Once a foster child, Always a foster child

Hart of Fostering

Our journey into foster parenting in Washington state.

Get Your Holiday On

Party ideas at the next level!

Life In The Eyes Of Lauren

Struggling with mental health, I was sat on a psych ward and inspired to start my very own blog! So here we are, welcome to life’s in the eyes of lauren where I’ll be tackling difficult topics and sharing my personal experiences, mainly focusing on mental health but also social services, the care system, living away from my biological family, school struggles and just life in general! i am writing to help poeple, if that means ive helped one person, ive achieved my goal. I hope you enjoy reading, Good Vibes Only xoxo

Pure Glory

The heavens are telling the glory of God; and the firmament proclaims His handiwork. Psalms 19:1


Sharing self help tips/advice/blogs on how to make your life beautifully positive!

%d bloggers like this: